Participation and Power, Understanding Vulnerability and Risk Activity

Participation and Power, Understanding Vulnerability and Risk Activity

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    • Katy Brickley

      July 22, 2021, 10:45 am

      Consider 1: We’ve tried to include participatory methods at each stage of our project, including experts by experience in the planning, recruitment, design, delivery and dissemination. I suppose participation is highest in the delivery in that participants will be curating the exhibition and exhibiting their own photos and texts. We are thinking now how to make the PhotoVoice methodology accessible for our co-facilitators so they can truly participate in the design and delivery of the workshops.

      Consider 2: An Emotional Risk exists in the potential for our participants to divulge experiences of abuse or bullying due to the fact they are somewhat limited in being able to share these experiences generally. We have thought about this in advance and will explain to our participants that if we feel someone is at risk of being hurt, then due to safeguarding we might have to share this with other organisations, e.g. social services/police. We will also signpost people to appropriate services. A further risk is Identity Risk – participants may be associated with a particular view or experience of the home setting which perhaps others may react to (e.g. staff or fellow residents). We have designed our study to ensure that participants are not identifiable however this is something we need to keep in mind throughout the workshop process.

      Consider 3: We are making an effort to ensure our participant information materials are accessible and in various formats (e.g. print, Easy Read, video). We are aware of the communication barriers that may exist so will be checking understanding thoroughly when gaining informed consent from participants. We will do this at various stages of the research. We will try to make the workshops not too long, engaging, fun and will be mindful of people’s accessibility needs and adapt as appropriate. We encourage people to bring carers or support staff, as needed. We will seek venues which are accessible, welcoming and if possible, known to at least some of the participants. We will cover travel costs to the workshops and check how people will be arriving to ensure maximum safety. We will DBS check any staff involved in the workshops. We will jointly set ground rules and revisit these regularly. We will write workshop plans to ensure any risks can be planned for and contingency plans put in place.

    • Esther Marslowe

      July 23, 2021, 2:47 am

      Consideration 1: Participation will be incorporated at all levels with our project. It will be important in the planning and designing stages as it will better guide us into making the content delivered specifically to their needs. The need for participation will be most need in the delivery stage. This will allow them the opportunity to translate the message/story they want to be heard.

      Consideration 2: For our project, the target group can be very reserved so the way in which we deliver the content to them must be interesting or we may not get them to fully express themselves. The possibility of many participants being tech phobia at first may exist. Secondly, in some Indigenous communities, a language barrier may exist.

      Consideration 3: A lot of reassurance will be needed for them to know that workshop is a safe space to freely express themselves. This will be encouraged through a number of activities like setting ground rules, complimenting another’s other work and one-on-one dialogues.

    • Olly Perreira

      July 23, 2021, 4:11 am

      Consider 1: Participation. Participation would be highest in the designing aspect of our project as we will be doing a concept mapping involving the participants to get their ideas and thoughts on how to move forward with the project. They will also be actively involved in delivery since our project will be focusing on them and their views using photovoice to get their viewpoints. We may have to consider a little more how to get them involved in the dissemination phase, perhaps by asking them whose attention they believe needs to directed to their situation.

      Consider 2: Risks. (a)Security risks. Giving cameras to participants might make them vulnerable to being robbed as people may think they project has given them more than a camera and they are being secretive about it. (b) Community: tensions may arise if persons wonder about why someone was selected to participate and they weren’t, being a reason for jealousy or resentment towards selected participants (especially if they believe the project is giving benefits).

      Consider 3: Providing a Safe Space. We will advertise in the communities of interests, sensitising all community members about the nature of the project and that everyone will benefit in the long run. Additionally, we will get village leaders on board and thus have them encourage their communities to support the project and its participants.

    • Deborah Chinn

      July 23, 2021, 10:29 am

      Consider 1: Participation. We have set up a project advisory group that involves people with intellectual disabilities as well as other stakeholders. We need to make sure that people with intellectual disabilities’ voices are heard in the group. We have a co-researcher who is a man with intellectual disabilities and he is an equal and valued decision maker in our team. Because of the funding process, the overall design has been determined largely in advanced, but our workshop participants will determine outputs and choose their own interpretations. We need to be careful not to impose our views or agendas and will be co-facilitating the groups with people with intellectual disabilities who will be employed for this role.

      Consider 2: Risks. Based on the list of potential risks.
      Emotional distress – our participants may have experienced negative and traumatic experiences relating to their experience of living in different homes.
      Community risks – participants speaking out may put them in conflict with the services that support them. One of our partners is a residential provider organisation – I worry about how they might respond to criticism of the services that they provide from our participants. also participants may well be dependent on others to make sure they can attend workshops, so we will need to work with and support these facilitators as well.

      Consider 3: Providing a Safe Space. Finding a really good venue will be important. I think the most important thing will be to go at the pace of our participants – we might need to rethink our number of sessions! I think it will be important to take time to explain the nature of the process and teach people photography skills.

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